Brossettelewis

7.16.2008

Give me some freakin amoxicillin!

I'll spare all gory details (just the highlights) but I was inches from this.

I just need some freakin' amoxicillin for my baby! She has double ear infections. I checked the black market and there's not really a demand. The stars aligned for us yet again at the pedia.... we needed a Rx, in an effort to 'be efficient' I had Lady call it in so we wouldn't have to hang out at WalMart, she forgot to leave what doctor she was with. I blame this completely on lack of experience and have mental images of her relaxed at home, carefree... {it's my mental image, back off}. So, when we get to the pharmacy at 4:50 the pedia is gone for the day and I have no Rx paper. (Thurs is their day off) I spend the next hour with all four moaning or crying and on the phone with Dr Whoeversoncall's Lady and/or hold, Rich, and eventually my sister to get his home number; of which I gave to the PharmTech at WalMart and watched her talk to someone. Yes I cashed in the sacred "your my sister's BFFs daddy".

I finally convince her that MY daughter is being treated as the red headed step patient and I'm not going to quit regurgitating my plight until the doctor approves my baby's script. An hour and twenty later, and a emergency "Mom I've got poops" from Katie, I have drugs in hand, made friends with Lady PharmTech, and am taking my toys and going home. Anyone know a great pedia, with even greater office staff, looking for a rockstar set of twins and two adorable sisters?

1.07.2008

TTTS Maternal Fetal Medicine Media Event

Today's story in the Tribune. This was done before the press conference and was in today's paper. We attended the press conference and were interviewed by ABC4, 2News, Fox13, & KSL 5, SL Tribune, Deseret News, & Healthy Utah Magazine. We should be on tonight ABC at 5pm MST or KSL 5 at 6pm and most all of these have internet feed.

I'll try to link them all.

A KUTV story

Let's clarify here!... “It worked. I'd do it all over,” said Libby... The question asked was " Knowing what you know now and have your twins with you, would you (in reference to amniotic reductions and the septostomy) go through it again? I know 'some' (ahem ...harkthewaa ...cough) media folk see this as micro managing a pregnancy that would have made it without all the monitoring and intervention. My boys would have died in Washington at 21wks due to a pre mature delivery brought on by a rapid increase in fluid, I have no doubt. I would do it all over again...I would not 'wait and see'. I know I would not have them.

KSL Story

Deseret News - should be in Tuesday's edition
SL Tribune- should be in Tuesday's edition

If you find one that I have not linked yet, please leave a comment and I will add it.

11.02.2007

Purge post

**friendly reminder- this is my place to unload in order to keep my sanity**

I am ready for this week to be over. It's been non-stop all week, plus add 4U4 and it is just too much. We and/or I did a halloween party, family halloween, IUD OB visit, MFM visit for media stuff, interview for St. Marks, got ultrasound & birth records for the TTTS foundation, birthday shopping for dad, made a cake, had a three cousin & 3 aunts birthday party at a Playplace, while still keeping everyone clean and fed sine Tuesday. Did I mention I have a cold or the flu and the boys are not sleeping well. The poo post below was the day we did all the hospital type stuff. The pillows that are on their way to the trash are still on the front porch. They fit neither into the important nor urgent quadrant (eww, did I just use a Covey-ism to justify poopy chocolate pillows on my porch? how embarrassing!!).

I went to the temple to figure out what I need to be doing to "do my best" and had two options. I feel like He picked both and to do it without begrudging it or with anxiety. So, what a week to start being calm. It's hard. I can not do my best that I am capable of given my current load. I have a hard time figuring out what percentage of my best is appropriate right now. I can't make those (my boys) who are incapable of choosing to sacrifice, sacrifice (ie: waiting to nurse, my stress level affecting my supply, just being with them versus wake, feed, burp, change, wrap, & back to bed...and that's just my boys).

We're going to Outback tonight for mommy's gift to daddy reminiscent of the days of double income, cheap rent, no kids, and Outback multiple times a month. Now to find a babysitter (a small detail I doubt Rich recalls me asking him about).

So, can you tell that my blog has recently become my little BFF? Outback was packed (2 hr wait) so we went to Tocanos and had Mt Dews and a meat-apalooza. I think the way back to my sanity is through red meat and caffeine, who knew!

10.19.2007

distal symphalangism (sĭm-făl'ən-jĭz'əm)

Katie & I have a rare gene mutation called distal symphalangism. It is is ankylosis or rigidity of the distal interphalangeai joints of the hands. Findings report substantiate the mutation as an autosomal dominant phenotype. The most common expression of the mutant gene is rigid index fingers (which are where Katie and I have it). Craniosynostosis, premature closure of the sutures of the skull, is very closely related but is currently unexplainable as to why; hence my interest in it, a genetic oddity to Katie and I could be much worse for James and Miles.